Calling For A System Of Care
For people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM) and Environmental Sensitivities/Multiple Chemical Sensitivity (ES/MCS).
CareNow Ontario works to create awareness and drive action for the development of a health and social services system that addresses the needs of those who have chronic and complex environmentally linked illnesses. Specifically, CareNow seeks to improve access to services for those who have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM) and Environmental Sensitivities/Multiple Chemical Sensitivity (ES/MCS).
In the absence of an established system of care, nearly one million people in Ontario live with these intrusive and often debilitating conditions knowing that their physicians lack the diagnostic tools they need to create and support effective treatment plans. CareNow Ontario advocates to make real and effective change happen at both the government and community level so that people have essential and affordable pathways to medical and social care.
Communication and Events
No tool developed for MCS
May 25, 2024
On May 2nd, 2024 the Centre for Family Practice (CEP) released three tools for FM, ME/CFS and POTS. However, they did not release a tool for MCS. Instead they published a single paragraph that is inadequate, unsubstantiated, not consistent with the current evidence base and not supported by expert clinicians or patients with lived experience. See slides xx in ppt presentation below that presents the paragraph and the concerns with the statement. CareNow Ontario is calling on the Minister of Health to immediately remove this paragraph from their website and to develop an equivalent tool to the ones developed for FM, ME/CFS and POTS.
Centre for Effective Practice releases tools for FM ME/CFS and POTS
May 2, 2024
On May 2 2024, the Centre for Effective Practice released three tools on FM, ME/CFS and POTS to help family physicians recognize, assess, diagnose and treat these conditions. If you suspect you have these conditions and your family physician or nurse practitioner are not familiar with these conditions, please direct them to these tools. See link below
May 12th International Awareness Day
May 12, 2023
May 12th International Awareness Day Events
Update on Action Plan Media Advocacy
Communication and Events
Three Point Call to Action CareNow Ontario calls on the Government of Ontario to implement a Three point Action Plan.
- Implement and fund a system of care
- Release “Laying the Groundwork”
- Develop case definitions and clinical guidelines.
For details see Calls to Action
We Need Your Voice:
- Contact your local MPP and tell them about how the medical conditions of ME, FM and ES/MCS have impacted you and your family and how there is no system of care.
- Leave your MPP the backgrounder and ask them to request the Minister of Health, Sylvia Jones to take action now
- Report back to CareNow Ontario on the outcome at info@carenowontario.org.