Calling For A System Of Care

For people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM) and Environmental Sensitivities/Multiple Chemical Sensitivity (ES/MCS).

CareNow Ontario works to create awareness and drive action for the development of a health and social services system that addresses the needs of those who have chronic and complex environmentally linked illnesses. Specifically, CareNow seeks to improve access to services for those who have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM) and Environmental Sensitivities/Multiple Chemical Sensitivity (ES/MCS).

In the absence of an established system of care, nearly one million people in Ontario live with these intrusive and often debilitating conditions knowing that their physicians lack the diagnostic tools they need to create and support effective treatment plans. CareNow Ontario advocates to make real and effective change happen at both the government and community level so that people have essential and affordable pathways to medical and social care.

Communication and Events

Laying The Groundwork: Surprise Release

As a result of a Freedom of Information request in the summer of 2025, the Ministry of Health was ordered to release the “Laying the Groundwork” report.  This report is an implementation plan for the Taskforce on Environmental Health’s final report:  CareNow: An Action plan for people with ME/CFS, FM & MCS.  For information about the report, CareNow Ontario’s response and our action plan see the following 2 items:

1. Laying The Groundwork

2. Powerpoint to members and friends Oct. 30, 2025 

  

We are proud to be a part of RESILIENCE 2026, @aseq-ehaq International Conference on Multiple Chemical Sensitivity (MCS).  This second annual edition of the resilience conference will feature presentations from:

 

**Paul-Claude Berube, LLB – The former President of Accessibility Standards Canada, highlights how everyday exposures affect health, quality of life, and accessibility, underscoring the importance of clean environments, inclusion, and the right to breathe clean air.

**Caroline Barakat, PhD, Professor at Ontario Tech University, shares how simple educational tools can help people make safer everyday choices and reduce harmful chemical exposures in indoor environments.

**Bruce Zevallos – This perspective from a paralegal at RCR Legal Services highlights how courtroom evidence can be used to support access, inclusion, and the right to safe and healthy workplaces.

 

**This two-day international conference brings together researchers, clinicians, policymakers, and civil society leaders to advance scientific understanding of Multiple Chemical Sensitivity (MCS) and strengthen public education and awareness of MCS as a disability.

 

**Join us as we move science forward, elevate lived experience, and build practical solutions for accessible air in the built environment.

 

Spaces limited! Save your spot! The fully virtual conference is free to attend, and you can learn more or register at https://aseq-ehaq.ca/en/resilience-registration-2026/

 

To support accessibility, simultaneous interpretation will be available in English and French, along with ASL and LSQ interpretation, CART captioning, and Zoom captions.

 

We’re so excited to be a part of RESILIENCE 2026, and we hope to see you all there!

Trent University Research Opportunity for Canadian Youth and Young Adults with ME/CFS

A PHD student in the Environment and Life Sciences department at Trent University is asking for participants for a study that aims to investigate the following:  

The effects ME/CFS symptoms may have on the quality of life and school participation of young people living in Canada

Eligibility:

Students aged 14-29

Diagnosed with ME/CFS or experiencing unexplained fatigue

Students  having to withdraw from school due to ME/CFS or unexplained fatigue

Also needed are students not experiencing any health challenges as a control group

For more information here is the link to the study info:

https://carenowontario.org/wp-content/uploads/2026/02/Trent-University-ME-Study-Invitation.docx

Communication and Events

Three Point Call to Action CareNow Ontario calls on the Government of Ontario to implement a Three point Action Plan.

  1. Implement and fund a system of care
  2. Release “Laying the Groundwork”
  3. Develop case definitions and clinical guidelines.

For details see Calls to Action  

We Need Your Voice:

  • Contact your local MPP and tell them about how the medical conditions of ME, FM and ES/MCS have impacted you and your family and how there is no system of care.
  • Leave your MPP the backgrounder and ask them to request the Minister of Health, Sylvia Jones to take action now
  • Report back to CareNow Ontario on the outcome at info@carenowontario.org.
Resilience International Conference on MCS

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